For the third consecutive year, members of the Club Rothaíochta na Sionna, (Shannon Cycling Club) have held a charity cycle to raise funds for six-year-old Ethan Fanneran who suffers from a rare genetic disorder.
The charity cycle took two circular routes from the Go-Tri premises in Smithstown with more than 50 cyclists who began by passing the home of Ethan’s grandparents where his grandfather Eamon wished them well on their journey.
Ethan’s mother Katrina was born and reared in Shannon and now lives in England as the young boy is receiving regular treatment in London’s Great Ormond Street Hospital. Brave little Ethan was diagnosed with MPS 6 when he was just over two years old.
Children born with the condition appear normal until symptoms begin to appear between the ages of 2 and 4. There is currently no known cure for MPS which is a progressive and degenerative syndrome. Katrina describes Ethan as, “an amazing, strong and beautiful little boy”. She said he is full of life, love and laughter.
As his loving mother, she is determined to ensure he remains like that for as long as possible. Already the little lad has suffered damage to his liver, heart, spine, skeleton, neck, airways, eyes and ears as well as having multiple hernias.
To date Ethan has had numerous surgeries to improve his day to day quality of life. According to Katrina, “Ethan is the bravest little boy and he inspires me every moment of every day. He gives me something to live and fight for and he is my little soldier”.