Staff at Element Six will set out on a charity 50km cycle to raise funds for Cliona’s Foundation which has provided valuable support for a colleague’s son.
Cliona’s Foundation was co-founded by Terry Ring and her husband Brendan in honour of their daughter Cliona, who died in 2006 from an inoperable brain tumour aged 15.
According to Terry, “Unless you’ve been in the position of having a really sick child in your family you don’t know how quickly expenses can mount up. We want to support families who are already going through the horrific trauma of dealing with a very ill child shouldn’t have to face dealing with money worries on top of that.”
Trevor Barry is the father of two-year-old Fionn who has spent most of his young life in hospital being treated for Infantile Spasms, a debilitating and life limiting illness requiring 24hour care.
Trevor Barry works at Element 6, his work colleagues chose Cliona’s Foundation as their designated charity for the year to give something back for the wonderful support for the two-year-old.
Fionn was diagnosed with the illness at just six months old and is unable to walk, stand or even sit unaided. He also has speech challenges and is visually impaired.
The cycle takes place on Friday, September 1st, from Shannon Free Zone on a route that will take them to Sixmilebridge, Quin and Newmarket-on-Fergus before returning to Shannon.
Commenting on the event, organiser Grainne Loonam said, “Fionn is a young boy fighting a brave daily battle against a very serious and debilitating illness.
“Cliona’s Foundation provided valuable financial support to help his family with the costs of his round-the-clock care and we just wanted to do something in return.”
“The charity does incredible work providing financial assistance directly to parents of children with life-limiting or chronic complex care needs,” added Grainne.
“We have sponsorship cards printed and are asking staff to not just participate but also to raise funds for the event, which is our biggest fund raiser of the year so far.
“Trevor’s family is indebted to Cliona’s Foundation and their intervention is obviously something that we appreciate very much so we are hoping for a good return.
“Cycling is a healthy activity, so we are encouraging as many staff as possible to take part.”
Funds from Cliona’s Foundation are used to pay for the ‘hidden costs’, including accommodation, food, travelling and other miscellaneous expenses incurred by families with sick children.
If you wish to follow his story, check out Fionn’s Facebook page at www.facebook.com/fightforfionn.